Coping with a Disability
Posted August 14, 2024 by Premier Disability Services, LLC®Disability can manifest itself in many ways. You may find yourself struggling with cognitive tasks, such as difficulty concentrating or remembering. People with limited mobility can find it hard to perform basic movements, such as climbing stairs or buttoning clothing. And experiencing a loss of independence can cause a decline in mental health, leading to symptoms of depression and anxiety.
According to the Centers for Disease Control (CDC), almost 30% of Americans are living with a disability. So if you’ve been diagnosed with a permanently disabling condition, you’re not alone. Here are some tips to help you adjust to a “new normal” and thrive within the context of a supportive community.
- Take time to process what’s happened. Depending on your diagnosis, you may feel like your entire world has been upended. It’s completely understandable to be anxious about future treatment or angry at having favorite activities taken off the table. During this adjustment phase, it may help to reach out to a mental health professional who can suggest resources tailored to your needs.
- Ask questions. Many disabled people feel a loss of autonomy that can be compounded by obscure or technical medical terminology. If your head is swimming with questions, write them down as they come. Bring your notes with you to your next doctor’s appointment. You can also ask a friend or family member to come with you and take notes so you can focus on the conversation with your medical professional.
- Advocate for yourself. It can be difficult to speak up on your own behalf, especially if you’re not used to it. But you deserve to feel safe and comfortable receiving assistance. Try raising smaller concerns with others first so you can then feel more confident addressing larger hurdles.
- Set boundaries. “Spoon theory” is a popular metaphor people with disabilities sometimes use to describe the amount of physical and emotional effort they can expend throughout the day. If you’re running low on your energy reserves, let others around you know. Well-meaning loved ones may not understand that even a short visit or simple task can be very draining for somebody with a disability, so it’s okay to tell them when you’re “out of spoons” and need to rest and recharge.
- Be kind to yourself. You don’t need to be a superhero or live up to unrealistic expectations. When you feel frustrated about your limitations, it may help to focus on what you can do. Accepting that making mistakes is part of learning and growth will make it easier to move forward if you don’t succeed with a new skill on the first try.
Some people find it rewarding to attend disability support groups to help with the sense of isolation that can come with many medical conditions. These groups allow you to connect with people in similar situations and discuss challenges unique to your diagnosis. Many groups offer virtual sessions for people who aren’t able or don’t wish to attend in person.